Fragile X Syndrome Research Workshop 2018

Fragile X Syndrome Research Workshop 2018


Patrick Wild Centre logo
May 21, 2018
Informatics Forum, Crichton Street, Edinburgh

After the success of the first Fragile X Research Workshop at the University of Oxford in 2017, we are delighted to be running this event for a second year. This year's workshop is a collaboration between the Fragile X Society and the Patrick Wild Centre at the University of Edinburgh.

The aim of these workshops is to bring together the research community who are either currently involved in, or who are interested in, Fragile X Syndrome research. We are keen to promote further interactions amongst UK-based (and EU-based) researchers who investigate the condition, with a view to supporting the development of a network of researchers and to investigate opportunities for future collaborations such as: joint projects, data sharing, protocol sharing and harmonisation of measures. The hope is that together we can further develop work addressing key issues of concern to those individuals and families living with fragile X.

In order to help achieve our aims, the workshop will involve a number of different elements, including: keynote talks; flash talks and posters to give overviews of current UK research into Fragile X Syndrome; discussion sessions.


We are very fortunate to be able to welcome Professor Sébastien Jacquement from the University of Montréal as one of the keynote speakers at this year's event. Sébastien has a long and wide-ranging history of research in the fragile X field and beyond. He will talk on the lessons learned from the clinical trials of new medications for fragile X syndrome."

Furthermore, we passionately believe in the importance of involving individuals with Fragile X and their families in the research process. As such, we are so pleased to be welcoming Craig McDonald, Chair of the Fragile X Society, to discuss his experiences of being a Dad to Stuart and Matthew (@stuandmattmcd on twitter), as well as their family's involvement and views on research.

Finally, we are delighted to be welcoming Professor Jeremy Turk, who will be reflecting on developments in our understanding of Fragile X during his career, and some of the key questions still to be addressed.

Talks and Posters

  • To be considered to present a talk or a workshop, please submit an abstract via this page for consideration. Word limit: 250.
  • Note: due to small space available for entering text in the abstract form, it will be simplest to copy and paste the abstract into the box in the registration form. You will be able to indicate preference for either a 10 minute oral "flash talk", or a poster presentation.
  • Abstract deadline: Friday 16th February 2018
  • Notification of allocation of talks/ posters: by February 28th, 2018.

Event Registration

Tickets for this event can be booked via this page

  • Individuals with Fragile X or family members: Free
  • Early Career Researchers (PhD, Master's or Batchelor's Student): £15
  • Researchers/ Clinicians/ Other: £40
  • Optional post-conference networking dinner: £30

There will also be an optional networking dinner at an additional cost which we very much hope attendees will be able to join us for.